04 Aug Major Loophole Seen in Privacy Agreement by DNA Sites
Bloomberg recently pointed out a “glaring gap” in the new data privacy guidelines agreed to by major DNA testing companies including Ancestry.com and 23andMe.
It was pointed out by Vanderbilt University researcher James Hazel that the agreement does not cover de-identified genetic data.
Meanwhile, Marc Beebe of the Institute of Electrical and Electronics Engineers says that it can be hard to know how secure the data anonymization process is.
It was also noted that 23andMe’s policy states in fine print that there is a possibility that someone with access to the research data or results could expose personal information about the customer.