29 Aug DNA Testing Companies Lobby Hard Despite Mounting Privacy Concerns
DNA testing companies are said to be taking greater efforts in lobbying in the face of increasing data privacy concerns stoked by the Golden State Killer case where the suspect used data from a genealogy research site to locate his victims.
However, it was reported that Ancestry.com, the largest for-profit DNA testing company, spent $80,000 on a lobbying firm this year, in contrast to the $10,000 it spent in 2017. Meanwhile, Helix reportedly spent $40,000 to lobby on “genomic health, data privacy and security, and regulation of laboratory developed tests”.
It was noted that these companies can easily sell their customers’ health data to third parties as there are no HIPAA-like regulations protecting consumers’ private health information on genetic and geneology testing websites.