02 Nov Ambiguous Understanding of Genetic Privacy in US, New Study Reveals
A study published this week by Ellen W. Clayton from Vanderbilt University and colleagues revealed that participants in US genetic studies have an ambiguous understanding of privacy.
In a review of 53 U.S.-based studies involving a total of 47,000 participants which examined perceptions of genetic privacy among the general public, patients and professionals, the authors found that ambiguously-phrased questions often left specific concerns unclear. They also found that participants also frequently conflated privacy with confidentiality, control, and security.
The authors noted that the process of obtaining could be improved with increased disclosure around future use of collected data by third parties. They also hoped that their research can be used around the world to identify best practices around genetic privacy, making the collection and use of genetic data more trustworthy for participants.
Source: Medical Express