02 Aug Genetic Testing Companies Agree to Privacy Guidelines
Major genetic companies including Ancestry, 23andMe, MyHeritage, Habit, and Helix agreed this week to abide by a set of guidelines that seek to address consumer privacy concerns.
The agreement compels the companies to obtain “separate express consent” from customers before sharing their individual-level information such as genetic data and personal information to third parties. However, anonymized user data is not covered and can still be shared, as in 23andMe’s deal with GlaxoSmithKline.
The companies will also be required to disclose how many requests for information they receive from law enforcement.